Two days ago, we got up and started the day with a Target run. Got home around 10am and Dallas just wasn't himself, but then again, he hadn't been himself for a couple of days now. I gave him Tylenol and blamed his fussiness on his new teeth coming in. We had an appointment scheduled at the U of M to discuss the MRI results and what it meant for cochlear implants. My mom rode with me to the appointment for a second set of ears, and what else would you rather do on your day off! Dallas slept through most of the time we spent at the U, and we headed home about 3:30. He was so crabby on the ride, I thought we should stop in Inver Grove Heights and get him some Motrin ( I don't carry this with me, since he is not supposed to have it). We had just parked in the lot when he started shrieking so loud, I immediately knew something bad was going to happen. Just then he started convulsing, we both flew out of the car and got him out of his car seat. My mom saw him first and said his color remained good while it was happening. The seizure itself lasted about a minute, then a few more minutes for him to regain eye contact and start to cry. We followed MOST of the directions on what to do should this happen, but I did panic and call 911. After a few hours in the ER, they ruled out pneumonia, RSV, or other bacterial infections and sent us on our way with a directive to follow-up with a neurologist. So, that is that. I've made the calls and we are just waiting to hear back on whom to follow-up with.
The MRI results do show signs of Dandy-Walker, not the total syndrome, but a variant of it. We were previously lead to believe that this was not the case, so this news was highly disappointing. It wasn't a focus before, but the seizures have my wheels spinning...burning rubber in fact. More on this later.
The MRI also gave the ENT surgeon a better idea on which ear to go after first relative to the cochlear implant. We have decided to go ahead with it, and the surgery is currently being scheduled. It will take 2-3 months to get the OR time, so meanwhile I am going to Mayo for a second opinion. This is a big deal. Even if everything goes well during surgery and he is able to implant every electrode, there is still a chance that Dallas's nerves will not respond, etc, etc. It's going to be a long road and there are great risks, but we feel the benefits outweigh the risks and we're praying for miracles.
The plan is ever changing and we'll see how the neurology piece plays out over the next couple of weeks. Meanwhile, the D-man has been having some fun....see below!
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| Laundry Basket Ride Anyone? |
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| Cheeseball! |
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| I love Easter! |
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| First Haircut, the "before" picture. |
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| After! Holy Handsome. :) |
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