Seizure #4

Dallas came home from school on Tuesday and was very happy.  He ate a great lunch and played for almost 2 hours before going down for a nap.  When he got up, he was very groggy and tired.  Scott put him in his highchair for dinner and he seemed pretty out of it and looked pale.  He was not interested in eating anything.  Shortly thereafter he made a high pitched squeal and then started seizing.  His eyes and face were twitching and brown stuff was coming out of his nose.  Scott took him out of his highchair and laid him on the floor on his side and shortly after the seizure was over. Scott guessed it lasted only one minute.  He was very out of it and then vomited a lot after about 20 minutes.  We got him cleaned up and headed up to Children’s as his breathing was very labored.  His heart rate was 190 when we were admitted and his temp was 101.4.  His O2 stat was 85-92, but quickly went up to 95 and pretty much stayed there.  They tested him for RSV, Pneumonia, and Influenza.  All came back negative.  Because of the color of his vomit, his stomach fluid was tested for blood, which came back positive.  Since his hemoglobin was good – they decided against an Upper GI and we never did find a source or explanation for the blood (just that his stomach was irritated, but not a concern as long as there isn’t a reoccurrence). 

On Wednesday, he had an EEG, which came back normal.  In the end, he had  a pretty low grade fever along with a double ear infection which is all it took to cause the seizure.  He is not being put on any seizure medication and wouldn’t be unless he had a seizure without a fever.  

A piece of exciting news – we had a swallow study while we were there and he PASSED, which means he can safely drink liquids without any thickening!  That being said, we are going to wean him off just to be safe throughout cold/flu season.  

Dallas was a trooper.  It's very difficult going through this as he gets older.  Every time someone would come in to run another test, he would start signing "All Done."  He also signed "shoes" very frequently, as in "get me my shoes and let's get out of here!"  He was unable to eat/drink for 24 hours and he signed "milk" so many times, it was heartbreaking.  Since they were unable to get an IV in him (2 attempts), he was very dehydrated.  They wanted to keep trying to get an IV and we said "no."   I worry for the time when having an IV is critical, because I don't recall the last time they were able to get one going on him. He is just an impossible stick.

We are back home and Dallas is wore out, but moving in the right direction.

Getting some shut-eye with dad

EEG