To say it has been a while
would be quite an understatement! Half
of the year has gone by without an entry.
Several times over the last few months I will run into someone that will
say, hey, I follow your blog and there hasn’t been an update in a while….so it’s
then that I start thinking about it again and it’s now when I have nothing else
to do, that I can write an entry and update Dallas’s followers. J
Today is the 4th
of July. Dallas got very ill out of
nowhere and we landed at St.Paul Children’s hospital for the day and will be
here overnight. He has pneumonia and was
working really hard to breathe and suffering a high fever. We got here and the best hands have been
taking care of him. After some strong steroids,
several neb treatments and IV antibiotics and fluids, Dallas is doing much
better just 12 hours after admission. We
hope to go home tomorrow.
Aside from this recent stay,
Dallas had the best winter to date, with no hospital admissions all
winter. When I left off in December
Dallas had just gone through one of his puking bouts that we thought were seizures. This same thing happened in March and he was
then put on anti-seizure medication, and then it happened again in June. He was admitted in June while the vomiting
was happening and they were able to record it on EEG and determine that the
vomiting was NOT seizure related. He now
has the diagnosis of Cyclical Vomiting Syndrome. Basically this is a fancy name for vomiting
that no one can explain. It just
happens. So, off the seizure med he went
and we move on.
Dallas had an outstanding
year at school and continues to knock the socks off everyone. He is talking more and more and understanding
more about life in general. We work on
communication all the time and try to keep an understanding of his needs and
wants. His school team and intervener did a beautiful
job teaching him how to ask questions and begin to express feelings. Physically Dallas is getting stronger
too. While he is still unsteady on his
feet, he walks without his walker and has for some time now. He likes to hold someone’s hand, but also
likes to walk by himself too. Dallas
continues to have so many strong supports in his life between family, friends,
school, and his intervener. We couldn’t be happier about where Dallas is today.
Aside from the news on the
main attraction, our family is making a change. We are moving and our house is officially
SOLD one week from today. We will be
moving in with Scott’s parents while the building process continues on our new
home. We are heading to the country and building
a rambler, so it’s a big change but we hope it will be the best for our family.
As for Dakota and Dawson, they are both great. Dakota loved kindergarten and is excited for first grade at her new school. Dawson is high demand, but full of fun. He is an affectionate guy and loves attention. The more action the better and he loves his big brother and big sister.
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School Picture |
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Memorial Day |
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Fishing with dad |
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A little art with Aunt Renee |
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Ice cream bribery so I could get through the store!
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"You wash my butt, I'll wash yours" |
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Making brownies |
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Couch Sliding |
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Intervener Joan |
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