Dallas and I had a full day at Children's today.  We started with an ECHO, an ultrasound of the heart.  This showed that the artery that was initially repaired may be narrowing.  They are not able to tell from the 80 ultrasound images how much this artery has narrowing.  In order to see this in greater detail, a CT angiogram will need to be performed.  However, since this procedure involves sedation, ideally they would like to time this with another surgery provided there is one in the next 60 days.  For now, we were told not to worry.  Yeah right.

We met with the pulmonologist (lung doctor) next.  Unfortunately, Dallas continues to destat at night even with an open nose and HiFlo. He has a couple of more nights to get his numbers up before we'll need to decide if the tracheostomy is necessary to get this little guy the air he needs to grow.  This doc prescribed a nebulizer treatment once daily to try and help with the secretions as well.  This medication also contains a steroid which will help the inflammation in his nose.  A few of Dallas's primary caregivers are discussing the "plan" in the next couple of days.

Still do not have biopsy results from the surgery....should hear something tomorrow.

Dallas was such a good boy today.  So easy going, even smiled a time or two.