Monday, October 18, 2010

Last week was very busy with appointments.  On Wednesday, we saw the ENT surgeon and he checked Dallas's nasal openings.  There was still some inflammation from the surgery, so there was difficulty passing the catheters.  The doc shared his optimism relative to Dallas getting by this long without a trachestomy.  He feels like he is going to be successful with these surgeries.  We discussed a couple of different medications to try after the next surgery.  He was very open to my suggestions and paired them with some of his own to come up with a final game plan.  I have great confidence in his ability and willingness to do what is best for Dallas.  He reminded me that he is treating him as if he were his own son, and that meant a lot to me.

They placed a PH probe in Dallas's nose and down his throat for 24 hours to measure the actual amount of reflux he was having and the test showed that the medication is controlling the reflux pretty well.  Ahh, some good news!

Thursday and Friday we were working on getting the new hearing aids working correctly and we still have not gotten it figured out.  They still whistle when they're in his ears, so that's my first call of the day today.....

Dallas had a busy weekend, he spent time with his Grandma Bauer and Auntie Jamie so that Scott and I could get out both by ourselves and with Dakota.  We are sure lucky to have the wonderful family we have, there is a lot of help and love and we appreciate it very very much.

Dallas will have surgery again on Monday November 8th.  They will open his nose, perform a CT angiogram of his heart to check the artery that was initially repaired, and repeat an in-depth hearing exam.


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